Jackson mother struggling with rare diseases needs bone marrow donors

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JACKSON, miss. (WLBT) – As mothers, energy and the ability to keep up with our little ones come naturally to many of us.

I want you to meet a mother who is struggling with a rare disease that drains all of her energy and is in pain.
and she could be the key to her recovery.

“I know people are scared for me and that is something so unknown. If it was diabetes or high blood pressure, you at least know someone with this situation who can give you some pointers, ”said Chevonne Purvis Pampley

Today Pampley is radiant and beautiful, but no day is guaranteed to be good for this mother of two.

“It’s a scary thing, every day is different. Today I was able to run. I couldn’t walk on Friday and Saturday. I lay in my lounger all day. It affects my joints. When I make platelets, it hurts. When my platelets fall, I hurt. So it never means: “I’m fine, I’m better”. I have laboratories twice a week. “

A routine Pap smear resulted in the discovery of low platelets.

And finally she was diagnosed with aplastic anemia. It is a rare condition in which the body stops making enough new blood cells.

“I’m tired,” Pampley confessed. “I am so tired. And I can feel it some days. I’ll say, ‘Oh. It’s not going to be a good day. ‘ Or my head hurts or just … yes. “

So she needs bone marrow. And on Friday, the 18- to 40-year-olds made their way to Jackson State to see if they were a match.

The test was easy. They just took a quick cheek swab to see if they could help and if they were a match.

“There are no costs for you,” said Pampley. “If you are a good match, you will not incur any costs. The costs are covered by my insurance company, Be the Match or me personally, but I want you to know that you don’t have to come out of your pocket for anything. “

A way to say thank you to the person who could potentially give their life back.

“My good days, I’ll make the most of it,” she said. “I do more things and try to make as many memories as possible with my children because I don’t know how it will turn out.”

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